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A Call For Primary Stories

September 20, 2013

Hey everyone – I am working on a book about a primary care physician or physicians.  The book is a novel but I would love to hear any stories you may have about your interactions with primary care givers, be they NPs, MDs, pediatricians, anyone you get primary care from.  It could be you as patient, you as doctor, something you heard or read.  Stories in which bad things happen or in which good things happen.  I won’t use any names and I reserve the right to take artistic license, but I’d like to get some ideas about the kinds of characters and settings to include.  I’ll start to give you an example:

My second child was born with a congenital diaphragmatic hernia (CDH).  This is when during development a hole forms in the diaphragm and bowel is allowed to fill the chest cavity, causing the lungs to develop improperly.  Potentially life-threatening, but we were lucky and she got a good surgical repair and good return of lung function.  The surgeons were all over us right after she was born, and during her ICU stay.  Once the hole in the diaphragm was repaired and she went to the floor, however, almost all of her doctors seemed to disappear.  A new CDH is much more exciting than a fixed CDH, plus it was July so all the surgical interns had only been doctors for like 5 minutes and I scared most of them away.  My own pediatrician heard that Sarah was in trouble and came into the hospital NICU to review the X-rays and was there to talk to me and let me cry when I first went and saw Sarah’s tubes and wires.  She was the only one of Sarah’s doctors that came and saw her and examined her every single day of the two weeks we were at Boston Children’s. She drove in from her office a few miles away specifically to see Sarah.  She looked things up or hooked me up with other doctors when I had questions, and when Sarah came home she saw us every week for updates and checkups.  I saw the surgeons only once after discharge.  Now that’s good primary care.

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